simply jeanne B

It’s time for me to do it again. Next week I will be having another radiation treatment and body scan to make sure no thyroid cancer is still lurking somewhere in my body. I also have the pleasure of going on a low iodine diet again, starting today, and three days of isolation thrown in for good measure!  I thought I would share with you the journal that I kept while going through this for the first time last November.

11/04/08

Ok, folks, today is the big day – no not Election Day- well, ok, it is election day but I’m talking about the first day of my low iodine diet. I had oatmeal with strawberries and walnuts and a little sugar. Not bad, but ask me about it on day 13! More later, including election day results -Go Barack!

I weighed myself after breakfast – 122! I was not amused. After my surgeries I was finally able to lose most of the extra weight I’d been carrying around for several months.  For months I could only fit into one pair of jeans – stretch, of course. So when I got back down to 112  after my surgeries, I was quite happy. I could change my jeans!

Anyway, after I stopped taking the Cytomel a few weeks ago the weight was right back on again or maybe it was all that Halloween candy I snuck out of the bag (no wonder we didn’t have enough to hand out) or it might have been the eating out 3 out of 4 nights in a row last week including that trip to Longhorn for the Chocolate Stampede dessert – that thing should be outlawed!

. . . back to my diet. I made the spaghetti sauce from the thyca website. It was excellent! I wish I could say the same for the whole wheat pasta … think wet cardboard.

GOOD NEWS – Barack Obama will be our next president. At least, I pray that is good news.

11/05/08

Breakast – OJ, banana, egg white scrambled eggs. Not bad especially with a little ketchup on the eggs.

Lunch – leftover whole wheat pasta and sauce… sauce was excellent.

Dinner – planned to make chicken but it had been in the freezer so long I had to toss it. Ended up having more scrambled eggs/ketchup, pineapple, cuke/tomato salad and some peanuts to snack on…I can feel this getting a little old already.

Eric and I went to CCD where we listened to a woman speak about her ministry working with men in prison. It was pretty amazing and comforting to know that there is still good in the world, although the media would have us believe otherwise.

I got home and had a $100 order waiting for me in my email. Life is good.

11/12/08

Yesterday I got my initial dose of radiation. It was pretty much a non-event. After sitting in three different waiting  rooms I was given a pill and sent home. Tomorrow I will go in for my first body scan. I know where I’m going this time so maybe I can eliminate a waiting room or two.

For the next ten days I can’t get any closer than three feet to anyone, have to eat and sleep alone, cook my own food (not that anyone would want to eat what I’m eating) – solitary confinement.

My friends from BNI sent me an edible “flower” arrangement – that really made my day. I had just gotten home from the hospital and was ready to start feeling sorry for myself when the doorbell rang. It was really pretty and very tasty. I totally appreciated the gesture!

I’ve got four more days on the diet, that shouldn’t be so bad.  The thing that bugs me now is I’m supposed to be drinking a ton of water to flush the radioactive iodine out of my system, which is really not a big deal except at night. I hate having to get up to pee. I’m always awake for hours afterward and last night was no exception.

By the way, did I mention that I’m not losing any weight? I’ve stopped getting on the scale I’m so disgusted. Anyway, I can tell by the way my stomach looks that the number is not going to be good, so why bother.

11/15/08

Well, folks, it was bound to happen sooner or later. It’s 4:42 p.m. and I’m still in my PJs. Yes, I’ve spent the entire day in bed. I woke up at 3:00 a.m. with vertigo, a condition I wouldn’t wish on anyone. Ok, well, maybe a few people. Anyway, no one should expect to deal with cancer, even an “easy” one and not feel sick at some point. Note to readers: Never, I repeat, never tell somebody with cancer they have the “easy cancer”. That is the worst oxymoron I have ever heard.

I got my large dose of radiation yesterday and felt fine until the middle of the night and then the whole vertigo thing hit. Eric brought me a banana this morning and then made scrambled eggs for lunch otherwise I might have starved to death. He is the sweetest boy anyone could ask for.

Alright, I think I’m going to try getting up for a while. I have to go to the bathroom anyway. I’ve had about four times my usual water for the day…

11/18/08

Spent the day in my PJs again. I woke up at 3:00 a.m. again (I feel a song coming on )  and couldn’t get back to sleep. Just as I was finally dropping off again everyone else got up and woke me. I felt bad all day. Tried to rest but couldn’t get back to sleep. Had a headache and felt slightly nauseous all day even though I did take some medicine.

I started on Synthroid yesterday.  I’m off my low iodine diet, too. Thank the sweet Lord!! The kicker is the radiation has affected my taste buds, so all the food I was looking forward to tastes like shit! Well, actually just bland as hell. Hope that ends soon.

11/21/08

Well, I finally go in for my 2nd body scan today – I hope it goes well. My part is kind of easy – lie on a table for an hour and do nothing. I do that well- hahaha! I just hope the vertigo thing doesn’t kick in.

I had a little scare the other night. I woke up with my heart beating like crazy. I could hear it pounding in my ears! I didn’t know what it was at first until I was fully awake. Anyway, I knew this was on of the “serious” symptoms of the Synthroid, so I was a little scared. I just wanted to make it ’til morning without having a heart attack. I was so hot, too, not feverish, but hot-flash hot! (If it’s not one thing, it’s another!) Anyway, called the doctor in the morning and of course it was “Oh don’t worry about it”. Easy for them to say.  They’re always so understanding of your concerns. But, seriously, I was glad I  called so I could stop worrying about it.

I noticed today that I am getting some improvements in my energy level and my legs don’t hurt so much. Now, if I could just get my taste buds working…

11/13/2009

Well, folks, as you can see, I survived that ordeal. The hardest part was being isolated for ten days. That and the diet…and the vertigo…and losing my sense of taste (finally got it back in time for Christmas) …and … well,  it could have been so much worse. As I’ve said before, I am so very blessed to have lived through all this. I am doing my best to continue to make the most of each day and take nothing for granted!

As always, I’d love to hear from you. I leave you with a song from one of my all-time favorite groups,  ♫ Steely Dan.

Music has always been a big part of my life. My mom has often said that we (all nine of her kids!) could sing before we could talk. I often wondered about that – were we singing words we just didn’t understand yet, were we just making noise that sounded like singing? I don’t know, but I do remember although there was little money for extras at our house, we always had music – The Beatles, Crosby Stills Nash & Young (collectively & solo efforts), the Allman Brothers, Doobie Brothers, Carole King, Joni Mitchell, Mamas & the Papas… Music was something we could all enjoy together without fighting…too much!

When I started this blog, my idea was to title my posts after song titles. I’ve gotten away from that for a while, but I want to get back to it today. In fact, today’s post is specifically about the song Page 43 sung by David Crosby & Graham Nash. When I first heard it in high school, it blew me away with its simplicity of sound and message.  It talks about making the most of your life before it’s too late … kind of a recurring theme with me lately. I came across the song again recently and thought I’d share it with you. Have a listen. ♫

Page 43

words by David Crosby

Graham Nash and David Crosby, circa 1972.

Look around again
It’s the same old circle
You see, it’s got to be
It says right here on page 43
That you should grab a hold of it
Else you’ll find
It’s passed you by

Rainbows all a round
Can you find the silver and gold?
It’ll make you old
The river can be hot or cold
And you should dive right into it
Else you’ll find
It’s passed you by

Pass it ’round one more time
I think I’ll have a swallow of wine
Life is fine
Even with the ups and downs
And you should have a sip of it
Else you’ll find
It’s passed you by

What about you? Have you had a song make a lasting impression on you? I’d love to hear about yours.

Today’s post is brought to you by Linda Fisher, founder of Wings of Angels.

When I was forty, I was told that I had breast cancer. That day—that moment—changed my life forever. I had all these thoughts of how long I have, what about this, and what about that. I remember I stayed in those thoughts for a while before I was able to think about something other than cancer.

It took me a while but eventually I realized that this was actually a strengthening experience for me.

And now I want to help others who face the challenges of breast cancer and other illnesses. That’s why I founded Wings of Angels—to provide support and comfort to individuals dealing with recovery treatments. Using my own experience, I’ve personally handpicked items that provide comfort and encouragement when the recovering patient needs them most, and I’ve assembled them in a variety of gift baskets and care packages. For example, the Recovery Care Package contains helpful items to relieve the discomfort due to breast cancer surgery. We also provide other packages to comfort and lift the human spirit. You and your family, friends, or co-workers can provide just the right gift to show a loved one you care. Each gift basket and care package is filled with items carefully selected by me, knowing what will soothe and comfort the healing patient.

I invite you to browse the selection of care packages and breast cancer gift baskets.

Live your life for today. It is your gift. Cherish it.

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